I Am Free!

After all of the grueling days spent with fevers and an endless amount of pain, I am finally free.

I got out my PICC line out along with stopping all of the antibiotics and I couldn’t be happier.

I feel good, for once. My lungs don’t feel as though a pile of bricks is on them. I am no longer coughing to the point that I throw up. I am able to actually stand and go about life without possibly fainting.

I am also happy to announce that I am officially going to England this summer. It was a spur of the moment decision I made a month or so ago, I was able to get in all the documents, forms, and payments. Now it is official that I am heading off and I am so so excited.

I will only be gone for three weeks where I will take a creative writing course of some sort to get credits. I do not know what to expect but I do have family over there so hopefully, they can guide me if everything gets to be too much.

I love traveling and I always will. Being admitted through the dates that I was supposed to go on a trip was absolutely devastating. But you can’t plan for things to happen (now I know to always purchase travel insurance), life works in its own way.

In the hospital, I just kept thinking of getting away and seeing the most beautiful views in England.

Speaking of when I was in the hospital, I couldn’t tell you how grateful I was for all of the people who stopped to visit me. Even though it wasn’t that long of a stay, people came to see me and it meant the absolute world to me. So to those special people, thank you so so much for giving me company, cards, sweet treats, etc. I will always remember it and cherish you.

This admission was different than most because I truly was going about my medical decisions by myself. I spent every night alone and handled my doctors without my family. I actually felt like an adult for once and yes, it was terrifying but it kind of felt good too.

Twenty is really changing who I am and I am just going along with it.

Love,

 

 

The Little Things

A little bit of a life update: I am currently in the hospital for a lung exacerbation and it sucks. It sucks more than the usual sucking because I had planned on traveling this week. Timing is the absolute worst especially when you try to plan things out, even more so, when you have a life-threatening lung disease.

It is now two days since I stepped foot into the emergency room of the hospital. I was in pain; every breath seemed to exert far more energy than usual, my head throbbing, sweating and then growing cold again, and my cough left me huddled in a ball trying to hinder the pain as much as I could. It honestly felt like it would never end.

With my mom by my side, we sat in the chairs waiting. My name hadn’t even been called to put in the system. I held a box of tissues in my sweaty palm while a mask covered my face making it even harder to breathe. And then the tears just came pouring down, I couldn’t stop them.

It was another one of those life-defining moments. Those moments where it seems you are looking at yourself from a third person view. Seeing myself, pale, hunched over, having shameless tears that were slowly absorbing into my mask. This was the Caity I didn’t want to see nor did I like seeing.

I wanted to be the glowy, happy Caity that only had to worry about school, her job, and the people in her life.

I wanted to be the Caity that could travel to any place and be okay.

But that wasn’t me and the reality of it all is this Caity is always going to be around. Cystic fibrosis is going to have an impact on me for the rest of my life. It will always be a part of me.

So although I may not like seeing myself in such a state, I have to accept it.

Because the thing about us, as people, is we forget that we are human beings.

Human beings that go through so much, the wear and tear of the soul and the body. Every day we are constantly faced with a challenge and it might not be a life-altering one but it still affects you and everything in your life.

You aren’t perfect and that’s 100% okay. Because it’s in those moments where you feel at your absolute worst where you truly see how strong and amazing you are. It shows that you are real and struggle and I find that beautiful.

I still don’t know for sure how long I will be in here (I will keep you all updated). I still find ways to appreciate the little things like getting sour patch kids or having amazing people come and visit me to make my day. The love from my family and friends through every platform (texts, phone calls, Facebook posts/comments, etc.) mean the world to me and I am so grateful for the people in my life.

It’s really the little things that help you push through.

Love,

The Judgement Needs To Stop

I hate that there is always judgment.

The judgment of the way people greet another.

The judgment when a person walks into a room.

The judgment of a how a person dresses.

Judgement is always there.

I know it’s human nature to automatically categorize, but I wish for once that there wasn’t judgment.

That you could walk into a room and no one would have a preconceived idea of you by your complexion.

This is when I refer to the quote, “You can’t judge a book by its cover.”

It rings completely valid.

The way a person looks, the way they may act at first moments, does not distinguish who they are.

The beauty lies in the bones of that person.

What crafts them into the human beings they have become.

Their little quirks, insecurities, wishes, and dreams. Their mind and soul.

That’s what makes a person.

The physicalities should be a small detail in what a person should be viewed as.

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